Wednesday, 30 May 2012

Dry boring blog justification..

I really want to write more about the Switch on, the surgery, the last three months... But blogging will be taking a backseat for a few days (weeks)..

So this blog are going to be "Dear diary, blah blah blah" for some time more..

Till I get some time to breathe, this blog's posts may just be as fresh and interesting as the news read in newspaper-wrap in which your get your everyday laundry..

But beloved blog-readers, worry not, this blog will get its spice back as soon as I am able to carve out some time....

Tuesday, 29 May 2012

The Switch on..

Aarav's device was switched on today (29-05-2012).

Aarav will now be having two birthdays every year, his usual birthday, when he first came into this world, and today, a celebration when he first came into the "Hearing" world..

Happiest day ever, not just for us but for Aarav too!!
He has been wearing it all day and seems to like them. In fact, when the magnets fell off, he even tried to fix them back on his head!!!

This effort taken by him to want the implant working, within few hours of switch on, speaks volumes...

I am blogging today just to have today's date recorded..
I'll blog more details very soon ...

Tuesday, 22 May 2012

Aarav's Sign language..

Aarav's hearing loss was detected when he was 16 months old..

Before that, we had no idea that he couldn't hear, so we never even thought of using any sign language with him..
Whatever sign language we did use, was unintentional and just came as a part of baby talk..

Inspite of no extra effort from us, Aarav has picked up quite a few signs to communicate..
Aarav's most frequently used sign is 'No'.
And he does it in style.

 



If he doesn't approve of something, he will stare at you straight in the eye, with an annoyed expression, and will sign a big "No" with the pointer finger almost touching your nose.

And to ensure that you do get his point, he will monitor you (literally test and see) for a few minutes later to make sure you don't misbehave and repeat it..
 
 


When he is hungry, he comes and sits facing me, and then points to his mouth and to the kitchen, and then he will wait patiently till I get his plate.
He does the same when he wants water, he either points to a bottle or to the water filter or more efficiently holds his thumb like a bottle..

Aarav also does the "wait" sign.. raises his teeny eyebrows and then with both palms facing you till show the stop sign.. (like a traffic cop does)

Then theres the "is it enough??u happy??" sign that comes after any task I push him into doing...

There is self praise when he does something cool. And then he waits for you to appreciate him too..
 
All of this seems so amazing now, he understands gestures, and read expressions!!!
He even reads eyes, for eg , where you just point to something by just looking at it and then back to him and repeat again, he knows what you want him to see....
These signed communicaitons even most adults miss..

Whether we continue using signs or sign language after his CI is done, will be seen later..
But to realise that Aarav wants to communicate, and that a CI will bring him more options to communicate brings satisfaction that we are on the right track.


 


I am not worried anymore.
I am just waiting now for his ears to be switched on..

Friday, 18 May 2012

Surgery done...

A few days late on this update..
The surgery has been successful and the implant is in.. Aarav is doing well.
We got discharged from the hospital and are now at home.

I'll update details soon..

Tuesday, 8 May 2012

Getting ready for the big day..

A list of prerequisites have to be met before the surgery.

IQ assessment, blood and urine tests, xrays, vaccinations and most important, his good health should be maintained till the surgery date and beyond so that recovery is faster. Not even minor coughs and colds allowed for surgery..

The vaccination to be given is for menangitis. Two doses, a month apart.
Vaccinations given on 3rd-Apr-2012 and 5th-May-2012.

IQ assessment was done on the 21st April... This is an assessment done by a Child Psychologist to check his overall development. Basically, to help get a general idea of what milestones to expect in the coming year(s) after switch on..

The report says???
Aarav, at 18 months old, has a mental age of 20 months (An explanation to all that crafty naughty intelligence finally!!!) and motor age of 13 months. (Not surprised-he just learnt to walk, so thats ok)


Xrays were done on 7th may.
As little kids are too fidgetty during these xray photos, the technician taught me a superb Taekwondo-Kungfu-Judo-wrestling move to pin Aarav down long enough to get the xray done.

The Xray came out fine.
But it seems that now, I am going to have to endure quite a few hits and bruises, with Aarav practicing the same lethal moves to tackle me during the "I-do-not-want-to-do-xyzabc-right-now" situations.
They should consider these skillfully used 'elbow-in-mom's-throat-&-knee-in-mom's-tummy' tactics in the gross motor analysis. 13 months. Hah.

The blood and urine tests were done yesterday morning.

Aarav and I, spent the morning in the pathology lab.
I thought, pulling a vial of blood out of his tiny arm would be a big painful job, but he was amazingly cool about it. Just a whimper and an annoyed look and that was it.
In fact, when the nurse gave a piece of cotton to pressure down the needle wound, he was pleasantly amused.

On the ride back home, he spent his time busy pinching me and then pretending to use the same cotton piece to plug non-existent "needle" wounds on my arm and consoling me not to cry.
I am going to need the kungfu moves again today to cut his talons. Being pinched hurts but his sweet consolation skills were effective.
Neither of us cried much.

The biggest task now was collecting the urine sample.

For the sake of preserving the dignity and sanity of mommy-kind and to not alter the pathology lab's supreme cleanliness, I decided to do this Herculean task at home.

Have you ever tried clicking photos of lightning?? People spend many years of their life for 'one perfect picture'.
All that effort... for 'one perfect sample'.
Lightening photography and collecting the pee of a 1.5 year old, who has not been potty trained, is just the same...

Why??

You never know when it will strike.

Staring at it or chasing it around does not make lightening.
Or pee. 

It comes when it has to.

You never know how much, how strong and how long it will last.

It comes when you least expect it..

And vanishes in the blink of an eye..

Thankfully, unlike lightning, pee does not completely vanish when it strikes and can be collected off the floor.
 
 
To summarize, yesterday, many hours were spent in following an hyperactive happy little nudist.

After missing out on a few rare 'lightening moments', feeling tired and betrayed, I scanned the play area floor for remnants of the latest drizzle. 

Ta daa!!! My cup was half full!! Literally.


Finally, all the samples were submitted and all results received. And we have the much needed fitness certificate, that says that we are good to go ahead with surgery on the 14th!!!

Yay!!!
5 days to go.
5 more only.


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